UK Renal Registry

The Renal Registry is non profit making and as part of the Renal Association is registered as a charitable activity by the Charity Commission.

The UK Renal Registry was established by the Renal Association with support from the Department of Health, the British Association of Paediatric Nephrologists, and the British Transplant Society as a resource for the development of patient care in renal disease.

The Registry provides a focus for the collection and analysis of standardised data relating to the incidence, clinical management and outcome of renal disease. It thus acts as a source of comparative data, for audit/benchmarking, planning, clinical governance and research. The UK Renal Registry monitors indicators of the quality as well as quantity of care, with the aim of improving the standard of care. There is currently a concentration on data concerning renal replacement therapy, including transplantation. At a later date there will be an extension to other forms of treatment of renal disease.

There are many renal registries in other countries which provide data on the acceptance rate of patients for renal replacement therapy, the total number of patients being treated, treatment modalities and survival. The regular collection and analysis of biochemical and haematological information is a unique feature of the UK Registry.

Data is collected quarterly by automatic downloading from renal unit databases. Reports are published annually to allow comparative audit of facilities, patient demographics, quality of care and outcome measures.

The Registry provides data for participating renal units, NHS Trusts, commissioning authorities and regional offices. The development of the Registry is open to influence by all interested parties including clinicians, trusts, commissioning authorities, and patients organisations.

A more detailed explanation of the Registry’s activity is contained in the document ‘The Registry Rationale’ in the Report Appendix .